Nonprofit Organizations/Support Groups for Neuropathy

 

Click here for free DVD “Coping with Chronic Neuropathy”
Very extensive website with much information and links to further neuropathy-related resources.

Deater Foundation
Email: Incinfo@cmtausa.org
The Deater Foundation raises awareness and support for HSAN1, a type of hereditary neuropathy.

Foundation for Peripheral Neuropathy: Support Group List

Neuropathy Action Foundation
Excellent website

Neuropathy Support Network: List of Support Groups

 

By U.S. State

Arizona

International Pain Foundation/Power of Pain
38556 North Dave Street, Santan Valley, AZ 85140
Mission is to support patients, raise awareness and promote research on neuropathy-related pain

California

American Chronic Pain Association (ACPA)
P.O. Box 850, Rocklin, CA 95677-0850
(916) 632-0922 or 800-533-3231
Email: ACPA@theacpa.org

The Western Neuropathy Association (WNA)
PO Box 276567, Sacramento, CA 95827
(877) 622-6298
Email: info@pnhelp.cog
For patients in California, Nevada or Oregon

Connecticut

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue, Danbury, CT 06810
Tel: 203-744-0100, Voice Mail: 800-999-NORD (6673)
Email: orphan@rarediseases.org

Illinois

Foundation for Peripheral Neuropathy
485 Half Day Road, Suite 350, Buffalo Grove, IL 60089
(877) 883-9942

Maryland

Dysautonomia Youth Network of America
1301 Greengate Court, Waldorf, MD 20601

Sjӧgren’s Syndrome Foundation
6707 Democracy Blvd, Suite 325, Bethesda, MD 20817
(800) 475-6473
Extensive website with many resources

Minnesota

Minnesota Neuropathy Association
(952) 941-5372

New York

Dysautonomia International
67 Woodlawn Ave, East Moriches, NY 11940
Email: info@dysautonomiainternational.org

Hereditary Neuropathy Foundation, Inc
432 Park Avenue South, 4th Floor, New York, NY 10128
855-HELPCMT (435-7268) or 212-722-8396
Email: info@hnf-cure.org

Pennsylvania

Charcot-Marie-Tooth Association
P.O. Box 105, Glenolden, PA 19036
800-606-2682
Email: info@cmtausa.org

GBS/CIDP Foundation International
104½ Forrest Ave, Narberth, PA 19072
(610) 667-0131

The Erythromelalgia Association
200 Old Castle Lane, Wallingford, PA 19086
(610) 566-0797
Email: memberservices@burningfeet.org

Texas

Neuropathy Alliance of Texas
P.O. Box 40874, Austin, TX 78704
(512) 553-9130
Email: info@neuropathyalliancetx.org

Virginia

Patient Advocate Foundation
421 Butler Farm Road, Hampton, VA 23666
800-532-5274
Email: help@patientadvocate.org

Washington, DC

Caregiver Action Network (formerly National Family Caregiver Association)
1130 Connecticut Avenue NW, Suite 500, Washington, DC 20036
(202) 454-3970
Email: info@caregiveraction.org