Nonprofit Organizations Related to Neuropathy

 

 

U.S. National

American Chronic Pain Association (ACPA)
P.O. Box 850, Rocklin, CA 95677-0850
(916) 632-0922 or 800-533-3231
Email: ACPA@theacpa.org

Caregiver Action Network (formerly National Family Caregiver Association)
1130 Connecticut Avenue NW, Suite 500, Washington, DC
(202) 454-3970
Email: info@caregiveraction.org

Charcot-Marie-Tooth Association
P.O. Box 105, Glenolden, Pennsylvania
800-606-2682
Email: info@cmtausa.org

Deater Foundation
The Deater Foundation raises awareness and support for HSAN1, a type of hereditary neuropathy.

Dysautonomia Youth Network of America
1301 Greengate Court, Waldorf, Maryland

Erythromelalgia Association
200 Old Castle Lane, Wallingford, PA 19086
(610) 566-0797
Email: memberservices@burningfeet.org

Hereditary Neuropathy Foundation
432 Park Avenue South, 4th Floor, New York, New York
855-HELPCMT (435-7268) or 212-722-8396
Email: info@hnf-cure.org

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue, Danbury, Connecticut
Tel: 203-744-0100, Voice Mail: 800-999-NORD (6673)
Email: orphan@rarediseases.org

Neuropathy Action Foundation

Patient Advocate Foundation
421 Butler Farm Road, Hampton, Virginia
800-532-5274
Email: help@patientadvocate.org

Sjӧgren’s Syndrome Foundation
6707 Democracy Blvd, Suite 325, Bethesda, Maryland
(800) 475-6473

 

U.S. Regional

Minnesota Neuropathy Association
(952) 941-5372

Neuropathy Alliance of Texas
P.O. Box 40874, Austin, TX 78704
(512) 553-9130
Email: info@neuropathyalliancetx.org

 

International

Dysautonomia International
67 Woodlawn Ave, East Moriches, New York
Email: info@dysautonomiainternational.org

GBS/CIDP Foundation International
104½ Forrest Ave, Narberth, Pennsylvania
(610) 667-0131

International Pain Foundation/Power of Pain
38556 North Dave Street, Santan Valley, Arizona
Mission is to support patients, raise awareness and promote research on neuropathy-related pain